Tag Archives: Valley Fever

Valley Fever Journey~ Chapter 5

I was so sick. I had never been this ill in my entire life. (Feel free to read Chapters 1-4 of my journey for just how sick!) I was in the hospital for 11 days, waiting for a diagnosis of what was wrong with me.

One diagnosis came early, Sweets Syndrome, a “very rare inflammatory skin condition, or Acute Febrile Neurtophilic Dermatosis.” Say that three times real fast! That explained one set of rashes.

On October 18, 2020 I received the diagnosis that I was praying it wasn’t.  Valley Fever, or Coccidioidomycosis.  Apparently, I inhaled a fungus which causes “a disease especially in humans and domestic animals found in dry soils of the southwestern U.S., Mexico, and Central America. It can be asymptomatic or present as a mild to serious flu-like illness marked chiefly by fever, cough, sore throat, headache, fatigue, and pneumonia but sometimes becoming disseminated beyond the lungs especially to the skin, bones, joints, and meninges resulting in painful lesions, swollen joints, or meningitis.”

After the suggestion that I could have this, I prayed for any other result.  They ran several tests.  But if you know me, you know that I looked up all of them.  This one I did not want, others could go away…this one would not.

Thankfully, early diagnosis is a key.  Many of my friends that live in the Southwest(FB support group) have gone undiagnosed for years.  This resulted in dissemination, loss of lung, limb, meningitis and in some cases, death.

Fast forward….I am so much better.  I am now going to the ID doctor once every six months, so this month I will go back.  I have lesions, nodules and a cavity in my left lung as of six months ago, and my titer has been 1:2 for an entire year.  This reading indicates an active disease, but a good reading.  I am praying it is >1:2 this time around, which would indicate dormancy.

Those of you who have experienced “fatigue” know there is a marked difference in it and “being tired.”  That has improved as well.  I am walking 3-4 miles a day, which is a long way from using a walker for two months.

I still have joint and muscle pain, but it is tolerable.  I “eat to live” rather than “live to eat.”  Anyone that knows me well knows I stick to a pretty strict eating plan, and it has helped me.  I do listen to my body and if I overdo it…my Sweet’s Syndrome rash will break out and remind me it is okay to rest.

As I have said so many times..”everyone is dealing with something.” The pressure is on my friends.  But Jesus Christ has never left me, and He never will leave you. He told us in this world we would have troubles…but that He would bring us peace, and that we could take heart, He had overcome it all through His death on the cross. (John 16:33)

So what about my prayer?  Lord, anything but Valley Fever! He did not answer that prayer the way I wanted. I am not sure why, but I trust Him. He did answer my prayer in getting me through it.  Getting me through those tough days and nights when the pain was almost intolerable….bringing me peace when I was not sure what my future would hold.  Sending confirmations of His love through song, Bible verses and other people.

That is good news.  Remember you are never alone.  Once He is your Savior, He will walk with you through every one of those troubles, and friends…there will be troubles.  We live in a very fallen world.

None of us knows what tomorrow holds.  I know that I will always have to be mindful with my Valley Fever and whatever else this body has to endure. I know that it is okay.  No matter what, He will get me through it.

Jesus Christ is our only true Hope.

I am so grateful for those of you that prayed for me and took time to continue to check on me.  You were used to encourage us.

My prayer for you is that as you deal with the trials of this life, you will have the peace that only He can give. 

~Be Encouraged Today~

   Tammy

True Confession

True Confession~😔

If the Father can find an ear cuff for me on a parking lot, why can’t HE totally heal my Valley Fever? I wrote about it a wonderful “God Wink” yesterday.

Yes, I asked him that question today. My Abba Father can handle my honest questions, He knows my heart anyway. I had another CT scan on my lungs. My left lung still has lesions, nodules and a cavity. No change. My blood work still shows an “active” case.

So after a bit of crying and wondering, I was reminded of the Apostle Paul and the thorn in his side that he really did not want either. My thorn is a fungus. And everyone has something!

I choose to be thankful, that in this fallen world…my Father understands my frustration and weeps with me. I choose to trust Him.

Why? Because I am feeling so much better, can do things I wondered if I would ever be able to do again. I have never been as sick as I was those eleven days in the hospital and months at home. And I am stable. Even after Covid in August, no additional damage. I am so grateful.

God will never leave nor forsake me. He will never leave nor forsake you. When we don’t “feel” like He is listening, He is listening. My faith is not in my ability to believe I can be healed here on earth, but HIS ability to sustain me no matter what comes my way.

God proves to me over and over that HE is with me. It isn’t always the circumstances that I want, but this world is not what He wanted it to be either… and yet, HE provided Jesus for us…for our eternal life. For our HOPE in our todays.

Jesus is with you in your todays, in your disappointments, in your pain, in your sorrow. He was with you yesterday, and He will be with you in your tomorrows.

The trust has nothing to do with our ability, but with His grace.

Psalm 46:1-3 “God is our shelter and strength,

always ready to help in times of trouble.

So we will not be afraid, even if the earth is shaken

and mountains fall into the ocean depths;

even if the seas roar and rage,

and the hills are shaken by the violence.”

Be Encouraged Today

Tammy

Valley Fever Journey Chapter 4

Today is October 12.  One year ago I had to go to the ER.  I was the sickest I had been in my entire life. Fever, coughing, pneumonia, pain.  I had blisters and lesions literally from head to toe.  I think every doctor in the hospital came to see the lady with all the strange skin nodules. 

I laid in the hospital ER for eight hours while they tried to figure out what was wrong with me and get me admitted. The daytime hospitalist was afraid to admit me, and I was going to leave, “come what may.”  The ER doctor begged me to stay, as he wanted to try to get me admitted by the evening hospitalist, so that he could get me to a larger hospital in a metropolitan area two hours away.  

He was able to do so and I was able to get to there within two days. He dedication to getting me to the hospital made all the difference. They tested me for so many things, TB included and I was in isolation because of it.  The ambulance ride at 3am wasn’t something I had on my bucket list, but I put it on so I could check it off!

Fast forward a year later.  I got a hair trim today and went shopping alone.  As I listened to my Gaither Vocal Band CDs (what I listened to in the hospital for the 11 days at Barnes), looked at the beautiful blue sky, drove my own car with the windows down, walked on my own without that walker I used for two months… tears flowed down my cheeks.

Valley Fever is a disease that will alway be a part of my life. Simply by breathing in a small, microscopic fungal spore that became a parasite in my body. My ID doctor said I was “at the wrong place and the wrong time.” It happens in the Southwest region of the country more than we know.

 My CT scan from last week did not show any shrinkage in the lesions, nodules or cavities… but that also means there was no growth.  I still have blood work to do, and hopefully it will show the disease is dormant, but even if it doesn’t, I am better.  I am more myself.  I don’t have severe fatigue every single day.  I am walking 2-3 miles most days. 

I just spent the day thanking the sweet Lord for another year of life.  A life that is far from perfect, but a life He has given me.  It all seems surreal in a way.  If I talked to you in those 13 days, I may literally not remember it.  Evidently, that did happen quite often.  

But I thank you from the bottom of my heart for your care, your prayers, your calls and texts.  Many of you still check on me and that is precious, I know so many of you are dealing with your own trials in life, and I don’t take that lightly.

I am reminded of this story and that fiery furnace from Daniel 3:16-18

“Even if” the nodules, lesions and cavities in my lung don’t shrink or go away,  “Even if” Valley Fever stays with me the rest of my life, “Even if” I have days that I am hurting and am fatigued….

I will still love the Lord and worship Him with my whole being. He is my peace, my grace, my heart, my salvation and my life.

I pray He is yours.

Even if.

Be Encouraged Today~

Tammy